In G. Monasterio Tuscany Foundation (FTGM) since 1999 is operative an Hospital Information System modeled with a central data repository capable of maintaining many millions of structured clinical data, observations, reports, clinical evaluations. The collected information is shared, with respect of data protection directives, among different health care services providers and used in many research projects.
Current contents represent a Big Data repository that includes:
- 427.000 patients
- 98.400 EMR
- 1.447.706 outpatient encounters
- 4.403.600 reports
- 1.273.700 clinical events and annotations
- 9.781.000 observations and structured data
- 17.783.000 LAB results
- 534.000 e-Prescriptions
- 2.677.000 e-Subministrations
Such numbers are expanding rapidly, related to an increasing details on data collections and reporting for research and healthcare provision.
Following are reported significant examples of big database managed in FTGM with a significant research output.
IMAGE (1983 and ongoing)– it is a Institute’s dedicated cardiovascular data base where are collected all demographic, history, clinical and instrumental data at discharge of the patients.
Rare disease Tuscany registry (2005-ongoing) with the primary aim to support the sanitary management of the rare disease Tuscan patients (website http://malattierare.toscana.it/dati-statistici ).
MIOT (Myocardial iron overload in thalassemia) and E-MIOT (Extension-MIOT) network (2006-ongoing)– Clinical and instrumental data related to more than 2400 patients are collected from the birth to the last MRI scan using a web based data that links 10 MRI centers and 66 thalassemia centers around Italy (miot.ftgm.it)(emiot.ftgm.it).
INFAR study (2009- ongoing) – It defines patterns and behavioral trends of some class of population affected by cardiovascular-related diseases and measures the prognostic meaning of door-to-balloons time for AMI patients.
CARDADU study (2009- ongoing) – to study clinical efficiency of healthcare provision processes during in-ward period of admitted patients.
SICCH study (2002- ongoing) – to study heart surgery procedure efficiency and cross-relation to final prognosis, from initial assessment of patient’s disease, to surgical procedure execution, including a 30-days and 1-year patient follow-up.
INFECTION study (2009- ongoing) – to study and monitor clinical infections advent during patient admission, in order to prevent threat to patient safety and improve prognosis especially for surgical procedures.